NHS Funded Services

NHS Funded Chronic Fatigue Syndrome (CFS) / ME Programmes

Chronic Fatigue Syndrome (CFS)/ME is divided into three categories based on the severity to which individuals experience the symptoms and subsequent restriction of function and day to day activities. 

Mild

Mild

“People with mild CFS/ME are mobile, can care for themselves and can do light domestic tasks with difficulty. Most are still working or in education, but to do this they have probably stopped all leisure and social pursuits. They often take days off or use the weekend to cope with the rest of the week.”
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Moderate

Moderate

“People with moderate CFS/ME have reduced mobility and are restricted in all activities of daily living, although they may have peaks and troughs in their level of symptoms and ability to do activities. They have usually stopped work, school or college and need rest periods, often sleeping in the afternoon for 1 or 2 hours. Their sleep at night is generally poor quality and disturbed.”
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Severe

Severe

“These people are likely to only be able to manage minimal daily tasks for themselves. They will have severe cognitive difficulties and will likely depend on a wheelchair for mobility. They are unable or barely able to leave the house and they spend most of their time in bed. They are often extremely sensitive to light and noise and sensory overload will produce a severe pay back effect.”
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Your Tailored Programme

In accordance with current NICE guidelines, South Coast Fatigue runs two alternative programmes to meet the different needs of those individuals who are mild to moderately affected by CFS/ME and those that are severely affected.

Severe Bespoke Activity Management Programme:

South Coast Fatigue offers a bespoke package of care for those people who are classified as severely affected. A named Health Care Professional, usually a Specialist Occupational Therapist will be responsible for co-ordinating your care or working alongside your existing team.
  • Comprehensive functional assessment in your home

  • A rest and activity plan based on small achievable goals

  • Regular home visits to begin the process of education and therapeutic intervention

  • Weekly goals to introduce a routine that supports your energy, sleep and activity

  • Sleep management advice

  • Liaison with your family, GP, Adult Services, Wheelchair Services, your care agency etc

  • Access to a Nurse, Dietician and Psychotherapist if needed

  • A programme based on Graded Activity, Activity Management and CBT
Our therapists are experts and understand CFS/ME, so will work with you, not pushing, but supporting, and at your pace.

Next Step:

In all cases you will need to have a medical diagnosis of Chronic Fatigue Syndrome/ME to be referred to this service.
  • Our severe CFS/ME programme is funded by Individual Funding Request (IFR), which can be made by South Coast Fatigue or your GP

  • Once funding has been agreed you will have an assessment which takes place in your home over (up to) 4 sessions. The sessions are usually between 30-60 minutes depending on your individual needs

  • Your therapist will explore with you the history of your illness, what your current situation is, who is involved with your care, your domestic situation, things that help and hinder, what your goals are and together you will formulate a treatment plan

  • A report with this information then usually goes (with your consent) to your GP, the funding body and anyone else involved with your care. You will also have a copy for your records

  • When funding for intervention is agreed we will arrange to come to your home and begin working on your programme with you.
Discuss with your GP referral to our service either at your next appointment or over the telephone.

Mild to Moderate Activity Management Programme:

This programme is based upon the principles of Graded Activity and Cognitive Behaviour Therapy and the following information is covered.
  • Patterns of the illness

  • Relaxation techniques

  • Construction of an individual rest and activity programme

  • Sleep management advice

  • Advice about ‘Pacing’ and using this in conjunction with other options e.g. graded activity

  • Thoughts and feelings

  • You will also receive a comprehensive handbook as part of your Programme
As part of the programme you will have access to a Dietitian group session and Mindfulness taster session.

Next Step:

In all cases you will need to have a medical diagnosis of Chronic Fatigue Syndrome/ME to be referred to this service.
  • If your GP Surgery is in one of the participating CCG’s and you are aged 16-65 years old, please visit your GP and ask to be referred to our service.

  • If you are over 65 years old, you may still benefit from participation in our fatigue management programme. In the first instance please visit your GP and ask to be referred to our service and we will liaise with your GP about funding options.

  • If your GP is NOT in one of the participating CCG’s e.g. Isle of Wight or North East Hants & Farnham, you may still be able to participate in our fatigue management programme. In the first instance please visit your GP and ask to be referred to our service and we will liaise with your GP about funding options.
South Coast is recovery focussed and committed to ‘journeying with you’.
Referral Information for GPs

If you are considering referring one of your patients and would like more information, please telephone the service on 01489 668109.

Please complete the Referral Form using it as a checklist – there is no medical opinion within the team at South Coast Fatigue so we rely on your knowledge as GPs or from other professionals that may have seen your patient to have excluded the conditions listed on the form and to have already made the diagnosis of CFS/ME. We cannot see your patient unless you havecompletedthe box on page 1 to confirm a diagnosis has been made.

Please send the Referral Form along with all screening tests and any other relevant clinical correspondence, details of treatment/input to date to us at South Coast Fatigue either by post or secure email to fran.hill@nhs.net

Get in touch

To find out more about how we can help, please give us a call and speak to one of the team. They will be happy to chat things through with you.